Note: Special thanks to Maurice Trosclair and The Nobles Band for the impressive award presented to Bill for his service and commitment to the band for a life time.

I no longer enjoy blogging.........it has become a job that is not fun and does not come easy any longer.

When last I wrote we were full of hope for a appointment with a Baylor school of Neurology in the Houston Medical center. That turned out to be a very big disappointment. I was really counting on the doctor studying the several pages I faxed over from EJ. Doing a new evaluation..........a year and four months out now. I really wanted him to take Bill off of some on the RX he is on and to tell us that was holding his progress back.

Lori and Greg helped me bring Bill to his appointment..............long story short. The only change in the RX is to try not to give him the one half sleeping pill and night. That is working fine so far. However no change in his overall strength. His legs are just not working.

Bill and I have talked about the visit and agree it was a very big disappointment. The kids also agree. I think we are just really in a tight spot and just need to except it. Just because we want something to be a certain way does not mean it will happen the way we want it to turn out.

I still hate roller coasters. Especially the downs.................. Ruby