Well it is November second today.
Halloween night We had a great night at Greg's house.....Lori brought the Sno Wizard etc.... She gave away lots of snoballs a first for a lot of Texas kids and parents. Greg had 18 pizzas for the party and gave away 50 lighted swords, 50 lighted small swords, 50 light up rings for the girls, they were all gone in no time. Then we all brought candy and trinkets. Greg's neighbor Alex and his family brought Sangria his mom makes it with fresh fruit. Tina's family gathers there and our family gathers there and a good time is had by all. That's why we are in Texas.....Bill enjoyed himself without Sangria just being with family and friends.
News Bulletin......we are going to be great grandparents. Yep it is a surprise and we are all shocked still but late January or early February Abby .....Lori oldest and our first granddaughter who is 20 and will be 21 in January will be having a precious baby child.....Ohhhhhhhhhhhhhhh. Bill wants a boy....I'm playing it save a hoping for a healthy baby. Lori cannot believe she is going to be a grandmother. I remember that feeling. Now we are shocked that we are going to be great grandparents.........that shit is for old people. How did this happen to two nice young people like us.
Therapy update. The therapist that comes to the house is only working with Bill in the bed. He feels Bill is too stiff to try anything else. He is recommending I get him to a REHAB doctor and have his meds checked. I will work on that ASAP. Also, after checking into TIRR Rehab center. Long story short they do not accept any Medicare Advantage plans. I have a neighbor that is a nurse and helps with such insurance questions with me. She says if we change to straight Medicare. We pick up 20% and thinks it could run in the $100,000's for TIRR. The facility is in the Medical plaza which I have been told is between 1 hour to 1 1/2 hours on Interstate from our house. It is very intense therapy lasting from 1 hour to as much 3 or 4 hours depending how many types of therapy such as speech, occupational, physical etc. It is 5 days a week . I need help to get him in the car at home. They provide help to get him out and back in afterwards. Then I need help at home to get him back in the house. Bill does not travel well in the car. He cannot adjust his position and cannot maintain a comfortable position for very long. So he is a hand full for me in the car alone. Taking all things into consideration and after talking to a few people, I do not think Bill is at a stage that he can endure this schedule even is he got accepted into the program. I have also been advised that I would not be able to handle it. He has now been in physical therapy for the better part of the last twenty months. The ups and downs give my heart hope but in my mind, my eyes tell me it isn't happening. He has no muscles left....they are so weak.
It is so strange. When he works with a therapist or even the doctors we go see both in New Orleans and now here in Texas. They never express any opinion on his physical condition. They have nothing to say to me either. It's like they don't see it and I'm left to try to figure out what to do for him. Bill has very little strength in his legs. My chiropractor who has been with Bill and I for years. Explained it to me like this...when you have a stroke....some things die immediately from the damage. Other things are injured but will die slowly and over a long period of time. He is the only one that helped me know what we are now facing.
When I the QUEEN....I will have a doctors assistant who will work with the care givers and help guide them through the maze. It is quite a burden to have to make all of these decisions without any professional guidance. It is also very frustrating every time someone comes along a you get all excited about something they tell you about only to find out they are ill informed.
The roller coaster rides again. Up and down up and down up and now down again.
Monday, November 2, 2009
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1 comment:
God bless you
My wife is just beginning at TIRR, so we are hopeful but aware that we have to start planning now for life after TIRR
I have found that I am most able to deal with all this when I try to stay closest to God.
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